Stakeholder-oriented tools

Lead: Tilburg University May 2025

D6.1 Report on Assessment of Stakeholder Requirements

D6.1 reports qualitative interviews with 33 stakeholders in three groups — professionals (clinicians, researchers, policymakers), patients, and technology providers. It identifies five critical stages in integrating patient-generated health data, from collection through to the decision itself, and separates the priorities everyone shares from the ones specific to a single group. Its conclusion is that no group can be served in isolation: meaningful patient engagement, support tools for clinicians and solid technical infrastructure depend on each other.

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Lead: University of Applied Sciences St. Pölten December 2025

D6.2 Fit assessment between stakeholders and framework

D6.2 tests the tools IMPROVE has built against the needs recorded in D6.1, using a survey alongside a focus group. Individual tools get mixed ratings, but read as functional clusters — data infrastructure, clinical platforms, knowledge management, evidence generation — the ecosystem covers what stakeholders asked for. The gaps it names are implementation readiness and configuration support, together with better visibility and integration between work packages.

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Lead: Tilburg University December 2024

D6.4 Stakeholder identification, categorization and prioritization

D6.4 is where the stakeholder work starts. Through literature review and co-design workshops it identifies seven stakeholder groups relevant to the IMPROVE platform — health care professionals, patients, researchers and policymakers among them — and sorts them by role: end users who work with the platform directly, those involved in designing and building it, and those who need to know what it produces. It then sets out the interview programme across the five disease areas that turns those groups into prioritised requirements.

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